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Susan Caswell

Specialist
Feb 25, 2019
316
Im sorry to post but i am at breaking point how can i or anyone live with deafening tinnitus its horrific dementing cruel i can stand a lot and have but this i cant take i was so well and happy i feel this is taking my sanity but noise so loud day after day its more than a human being can stand please can someone help me i so hoped it would stop but just level at least i could live with i dont even know cause i have to end this i cant stay in this much distress its like being tortured alive i cant find anyone in the World with tinnitus like this what did i do to deserve this it made me so ill please someone can you help me to peace x
 
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Ghost2211

Archangel
Jan 20, 2020
6,015
Has your doctor offered you and suggestions?
 
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Susan Caswell

Specialist
Feb 25, 2019
316
Has your doctor offered you and suggestions?
They are at a loss only keep suggesting more toxic meds they just make this worse they wont listen
 
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Ghost2211

Archangel
Jan 20, 2020
6,015
They are at a loss only keep suggesting more toxic meds they just make this worse they wont listen
That's pretty frustrating. Would it be better to be deaf that listen to a constant loud noise?
 
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Susan Caswell

Specialist
Feb 25, 2019
316
That's pretty frustrating. Would it be better to be deaf that listen to a constant loud noise?
Yes ive asked they have said id still hear the tinnitus i cant work that out x
 
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Ghost2211

Archangel
Jan 20, 2020
6,015
Yes ive asked they have said id still hear the tinnitus i cant work that out x
Thats maddening. If you damaged the ear drum why would you still hear it? Where is it originating from?
 
A

Alpe

Member
Sep 2, 2020
13
i also suffer from tinnitus, cause is either neurovascular conflict or chiari 1 , got both conditions. White noise helps, like the sound of a fan, air conditioner, on youtube there are many white-noise tracks. Spoke to my neurosurgeon last year Jan. Seems like I will just have to live with it. Some people report that their tinnitus just stopped one day, after many years. I don't care about it anymore, its just something that my brain must get use to. Psychiatrist also told me to use white-noise, only thing that helps. I think it is helpful to know that there it is not something seriously, and thus can be ignored. I know it is terrible, and I hope that you can find relief.
 
S

Susan Caswell

Specialist
Feb 25, 2019
316
Thats maddening. If you damaged the ear drum why would you still hear it? Where is it originating from?
They say brain but its so in my ears both ears i cant understand it or how this has happened to me from nowhere just not come i was so healthy happy calm living lovely life never had ear trouble in my life but dont know how on earth it can be roaring like this i can no way take this rest of my life i have to find a way to peace never thought id have to thought id had all my medical quota and more ive had more than most people in one life time this is cruel so loud cant function wish i knew why it came on from nowhere i went to bed perfect woke up deafening noise thought it would stop go down or stay the same but not deafening roaring hammering drilling its as loud as jet plane i cant bare it any longer me who had so much living to do thought i had years ahead of me life was so good wonderful i was doing all sorts was so healthy ive tried everything possible to get this down stopped been good person all my life 2020 not right just left in this much distress its like being tortured alive x
 
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Ghost2211

Archangel
Jan 20, 2020
6,015
I see. Yeah, if it's a neurological problem the physical ear will make no difference. I'm sorry life has taken such a cruel turn. I can see why that would make life unbearable. I wish I could offer more than sympathy.
 
marcusuk63

marcusuk63

CTB
Mar 24, 2019
1,735
( The British Tinnitus Association has today revealed that the number of people living with the hearing condition is set to increase by more than 500,000 over the next decade, An estimated 1.05 million GP consultations take place every year in the UK )

I have to have the tv on even though i dont watch it , just for background noise ,
I often wonder if it`s anything to do with all the different signals we are bombarded with , mobile , wi-fi, microwaves, satellite etc etc ?
I`d like to find a spot on the plant (if one exists now ) where there are no signals at all and see if it goes away .

Surly researchers have thought of this and made an isolation room to test it but i cant find any such research .
 
G

Ghost2211

Archangel
Jan 20, 2020
6,015
( The British Tinnitus Association has today revealed that the number of people living with the hearing condition is set to increase by more than 500,000 over the next decade, An estimated 1.05 million GP consultations take place every year in the UK )

I have to have the tv on even though i dont watch it , just for background noise ,
I often wonder if it`s anything to do with all the different signals we are bombarded with , mobile , wi-fi, microwaves, satellite etc etc ?
I`d like to find a spot on the plant (if one exists now ) where there are no signals at all and see if it goes away .

Surly researchers have thought of this and made an isolation room to test it but i cant find any such research .
Is there a beach or national park near you? Somewhere deep in nature you can go and see if silence and lack of radio frequencies benefits you?
 
marcusuk63

marcusuk63

CTB
Mar 24, 2019
1,735
Is there a beach or national park near you? Somewhere deep in nature you can go and see if silence and lack of radio frequencies benefits you?
not near me no , in fact i doubt there is anywhere in the Uk , it`s a small island really compared to the likes of USA, OZ, India etc
 
G

Ghost2211

Archangel
Jan 20, 2020
6,015
not near me no , in fact i doubt there is anywhere in the Uk , it`s a small island really compared to the likes of USA, OZ, India etc
A google search pulls up some beautiful locations. It doesn't need to be vast, but rather just somewhat away from the city.
 
S

Susan Caswell

Specialist
Feb 25, 2019
316
i also suffer from tinnitus, cause is either neurovascular conflict or chiari 1 , got both conditions. White noise helps, like the sound of a fan, air conditioner, on youtube there are many white-noise tracks. Spoke to my neurosurgeon last year Jan. Seems like I will just have to live with it. Some people report that their tinnitus just stopped one day, after many years. I don't care about it anymore, its just something that my brain must get use to. Psychiatrist also told me to use white-noise, only thing that helps. I think it is helpful to know that there it is not something seriously, and thus can be ignored. I know it is terrible, and I hope that you can find relief.
Ive had the hissing for years and just never bothered me ever but this is a very different beast just wish i could stand it i cant mask it with anything my hyperacusis is that bad i didnt have that at first and coped the TV masked it and music and outside i didnt hear it all day but this now just horrific dementing torture. Im so sorry you have it i just cant believe its happened to my or why not this bad i cant find anyone world wide with tinnitus like this why wont it go down stop id rather have my cancer again than this least i had operations treatment been so well for 41 years i so want my life but its made me so ill just never stops cant get away from it but deafening roaring what on earth in my ears and brain is roaring x
 
A

Alpe

Member
Sep 2, 2020
13
Ive had the hissing for years and just never bothered me ever but this is a very different beast just wish i could stand it i cant mask it with anything my hyperacusis is that bad i didnt have that at first and coped the TV masked it and music and outside i didnt hear it all day but this now just horrific dementing torture. Im so sorry you have it i just cant believe its happened to my or why not this bad i cant find anyone world wide with tinnitus like this why wont it go down stop id rather have my cancer again than this least i had operations treatment been so well for 41 years i so want my life but its made me so ill just never stops cant get away from it but deafening roaring what on earth in my ears and brain is roaring x
yep. it
Ive had the hissing for years and just never bothered me ever but this is a very different beast just wish i could stand it i cant mask it with anything my hyperacusis is that bad i didnt have that at first and coped the TV masked it and music and outside i didnt hear it all day but this now just horrific dementing torture. Im so sorry you have it i just cant believe its happened to my or why not this bad i cant find anyone world wide with tinnitus like this why wont it go down stop id rather have my cancer again than this least i had operations treatment been so well for 41 years i so want my life but its made me so ill just never stops cant get away from it but deafening roaring what on earth in my ears and brain is roaring x
Stay strong, i know it is bad. ! there will come a time when this problem will be solved. Probably in the next 5+ years. Elon Musk's Neurolink is also looking into this....but until then....treat yourself well, good thoughts ! When we have pain we have to take special care of our thoughts. Don't allow it to ruin you.
 

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