I have a brain disease that medicine is debating whether it exists. It's a horrible pain you wouldn't wish on your worst enemy.
I have used every word in the dictionary, every study, every paperwork, I've had family come in and advocate for me.
Some doctors believe it. I've started treatment eventually. But many of them, for years, did not. Many acted annoyed or as if I was lying or wasting their time.
In speaking with many people over the years, this is very, very common in neurology. It's not a very good medical practice. It has a lot of work yet to discover. The tests aren't very good. But the doctors never want to admit this. I've met so many people in the same situation: in horrible pain that's led to losing a job or their entire life. And they are just met with a stare by the doctor.
The words aren't enough. You cannot change the mind of dogma. When someone believes you are wrong, they believe you are wrong.
Science wasn't enough either. The moment we believe science is perfect, we fail. Because it's man-made. And humans are imperfect. So it has more to learn, always. But the moment it believes it is perfect, it cannot see the flaws within it.
The worst thing is when you speak of your pain, and the humans around you are convinced that it is not real, so the more you use words to speak of it, the more it just annoys them. And they create a new story. Perhaps you are mistaken, or faking, or are lying to gain attention....or something.
Language works if people believe you. If there's proof. But all we have is what we have. We have science and medicine to take tests, and seek proof. But if the tests come back "normal", then your language must be false then, if science is perfect.
You can speak and speak of your pain, but no one has to believe it.
Now if somehow they could feel the pain, we wouldn't need tests or language or anything.
That's the universal language.
They'd understand in seconds.
Is there an interface that would allow us to enter into someone else's body, so that we could feel what they feel, and see if they are lying, or exaggerating, and see what it is they are talking about?
Maybe they'll figure it out one day. I believe that would be the universal language.