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I have the same question and the same disease. And I'm wondering if I can put it through my feeding tube straight into my jejunum
locked*n*loaded
Archangel
- Apr 15, 2022
- 9,006
I don't know if this would be pertinent, or not, but my dad had a gf who had a feeding tube (throat cancer), and she used to dump quite large amounts of vodka into it daily (alcoholic). She did that for years until she passed. It was really a sad situation, especially since my dad was fighting lung cancer at the time, didn't drink, and surely didn't need the added stress of the situation. Anyway, not sure what, if anything, can be taken from that, though, as far as making a comparison between SN and alcohol. If irrelevant, please disregard.
ihatemyselfwanttodi
Experienced
- Jan 26, 2025
- 296
I'm hoping meto helps speed up digestion enough that it doesn't matter
I have slow stomach emptying to be more precise, my stomach muscles are all weakened. There is no pain but it's provided one of many intolerable things in my life
Mine stopped working all together and started rotting so they removed almost all of it. They even sewed my throat flap down so it's impossible for me to throw up. So they put a feeding tube in. I just miss food so much. People have no idea how much they are addicted to eating until they can't.
I'm 37 and all my muscles are getting weaker. Urinating is disgusting. I was a normal person 4 months ago. I can't enjoy liquids because I know what will happen. It will only get worse I think.
Life is fucking hell
How long ago were you diagnosed. I was diagnosed about 8 years ago and it has only only gotten worse. I completely understand about liquids. I dread having to pee because of the pressure release.
Wasn't diagnosed. Stopped using testosterone in November and have no insurance. I'm just guessing what's going on. Fucking leakage is absolutely disgusting.
Don't have gastro just weak stomach muscles and probably pelvic floor
Having a Dr's diagnosis is pretty useless at this point. Having one has helped me none. I really sympathize with you. It is a hard life and alot of people don't understand which makes it harder
Well I wanted to donate my body but at this point I'm just considering turning my tiny home into a charcoal gas chamber and smoking weed until I pass out
Even though it feels like it and me telling you probably won't make a difference but it really isn't your fault
My birthday is tomorrow so I've really been thinking about it more and more
Even though it feels like it and me telling you probably won't make a difference but it really isn't your fault
My birthday is tomorrow so I've really been thinking about it more and more
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