Discussion Anyone else have MECFS/Long Covid planning to CTB due to this?

[It'sMyLife]

Didn't read every post on thread(srry im not ok rn) but YES. I have many conditions and there's a lot of dif names but holy shit the time I got COVID and after... well I was never the same.


Plus ME/CFS got officially diagnosis but for me it mixes with other health stuff.


Its fucking awful. No one really understands the tired. The desire to do things. Pushing ones self. Using adrenaline instead of core energy. The continuously crashing.


It's... a lot.

Can you open the link I posted?

 

[Freedombus'25]

Can you open the link I posted?

Yes I was able to. Im not able to read it atm but I am somewhat familiar with the vitamin. Amonv others. A lot of my blood work comes back normal. There is some to work on and I am always interested in multiple approaches. I shall read ot over when head it clearer ty

 

[lemonandcapers]

I'm late to the party, but I was diagnosed with an autoimmune condition after getting COVID.

The fact that I wear a mask and have to miss out on so many things just to be somewhat healthy is the main driver of my SI. Nobody really wants to associate with me because they think I'm "paranoid" and because "COVID is over".

 

[qewpie]

I have a version of this from chronic Lyme disease, covid made it worse, and then also other infections added on top. Lyme disease can act like HIV and suppress the immune system. Lyme may be at play in long covid, as tests aren't accurate. Anyway I feel similarly to everyone on this thread, I've lost everything now, am housebound with my parents, and feel terrible and often in pain. Latest symptom is not being able to sleep basically at all.

What are your chosen methods? I managed to source SN, hoping it's high purity. I had planned to do it but then read some threads on failure, and SI and guilt kicked in. I'm trying some treatments but really I think CTB is probably the answer.

How do we get over SI when really we wish to heal (but seems like we can't)?
This bit about getting over SI resonates with me. I may have to really dissociate and use drugs to do it… what about you?

oh..I didn't realize I'd seen you in this thread. I hope your CTB was successful and that you're not out there still alive trapped in an even worse state of body…

I'm late to the party, but I was diagnosed with an autoimmune condition after getting COVID.

The fact that I wear a mask and have to miss out on so many things just to be somewhat healthy is the main driver of my SI. Nobody really wants to associate with me because they think I'm "paranoid" and because "COVID is over".

welcome! I think missing out on things isn't too terrible when you realize that if you get more sick you can miss out on even simpler things..like e.g. very severe MECFS can't even take a look at sunlight




anyways for my almost 4 month anniversary i can say:

nothing has changed about my severity!!! I lay in bed with Unending Hell as my constant symptoms (which includes malaise, bounding pulse which vibrates my body like an earthquake, sinus pressure, headache)

i can walk but feel completely like a zombie PLUS i tried LDN which helps so many ppl but gave me a balance disorder instead so walking is Even More Difficult

im so fucking cursed

 

[qewpie]

someone posted to reddit about their husband with LC who ctb'ed. yup, this disease is a killer

 

[NeverHis]

Yes and it completely ruined my life.
The "fun" part of it is that it also seems to ruin my death. I don't qualify for Switzerland because doctors never really took me seriously, so I avoided them a lot. Which means my journals aren't good enough.
I'm too sick to know anyone, so I can't go on the streets and buy some "tar". I can't even order a package without the help of getting it here from a carer (parent in this case), so even if I were to find a SN source that's not gonna be stopped by customs, it will be stopped by my parents because the law says they have a responsibility to call the authorities if they find out what I'm planning to do.