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HopeToStay

Member
May 31, 2024
80
In March of this year i started getting some awful symptoms after a flight. Horrific taste in my mouth, dry skin, aches and pains in all my joints, nausea, erratic urination frequency, pain after urinating in left flank.

I am a digital nomad and has just arrived in Georgia (country) at the time. I let the symptoms go on for about 2 weeks, but after a bit of googling i realised: Hole feck, are my kidneys failing? Terrified i immediately flew back to the UK and went straight to a GP, only to be reminded of how terrible the GPs in the UK are. One blood test was done and kidney function was mildly down from previous but still within normal range, and at that moment the GP basically dumped me. Told me my kidneys were clear and it couldn't be a kidney stone. I attempted to get another appointment 2 additional times over the course of 6 weeks, trying to figure what the problem was as the symptoms had hardly dissipated, but was basically politely told to go away. During this 6 weeks i signed up to sanctioned suicide, as i had long been passively suicidal, but now with the fear that i had some kind of kidney problem that would take away my future i really started to think, ok my life is now completely pointless.

Anyway, after being dismissed by the doctor on the 3rd occasion i decided to take a more comprehensive private blood test. And it came back great, kidney function was back to being excellent, and i feeling better though far from symptom free. I concluded what i had was probably reflux along with possibly a brief UTI which had passed by itself. So i figured ok i'm not dying, i will go traveling again to a cheap country (Bosnia) and if it flares up again i can at least get cheap private care. I arrived in Sarajevo and for the first few weeks the symptoms continue to decline and i was happy, but then suddenly they flared up again. This time it took me about a week to bring the courage up to get more tests, but i did and they kidney function was down again, but still ok. With this result i sought out an ultrasound, and they immediately found a kidney stone. (Well done to my GP telling me i couldn't have a kidney stone twice). This kind of explained most of the symptoms, but not everything matched, but at least i had something that might fix it now. So i was keen to get it out to see if that would make me feel normal again.

I contacted my GP from abroad, but they refused to speak to me from abroad. So i researched the procedure for the NHS. Sadly my conclusions was it could take up to a year to get it removed. There is simply no way i could last another year with this worry, so i immeidiately looked at where i could get it done privately abroad even thought i was absoluteyl skint at this stage due to a client that ripped me off earlier in the year, and generally not doing much work this year because i was in a constnat state of worrying if i was going to die or not. I scraped every penny i could find and travelled to Turkey and spent 3,000 GBP on getting it removed.

Just last week i had the operation, but as i came out of it i could feel the stone was still there and now i had a stent. I immediately asked the doctor what happened, he said i had a scar in my uterer (the tube that comes out the kidney) that was heavily restricting draining and he couldn't get the laser used to destroy the stone into the kidney. In fact this poor draining is what caused the stone and all symptoms - he put a stent in my uterer to force it open.

So a lot of the stympoms have finally gone now, though not completely. But my word the stent is unpleasant, and i shall have to have it continouslly from now on unless i get additional surgery which may not be successful.

I am in a lot of discomfort now and. Part of the problem you see is i have a very bad lower back, i have scoliosis and loss of lumber. It requires constant maintenance and i've expended endless hours into trying to ameloirate it over there years with various exercises and techniques and it's likely one of these technqiues that has caused the strain and scarring of the uterer. In fact now i know what the problem is i can feel how the scar is strained as i exert myself. I'm not sure how this is going to work now, i will have to stop doing these exercise and just feel rough all the time due to my back.

So i'm not dying, which is great, but i sure feel past it now. And having lost so much during COVID (relationship, savings, great job) and approaching 40 now i really feel like my i am finished. I have so little enthusiasm for life now and this rollercoaster of health scare has destroyed my mental health even further. I am also about 2k in debt.

But I guess my suicide levels are down from an 8/10 back to a "resasses in 6 months time" 3/10 for now.

One thing i have realised though is i was like to get a stash of N to have around should i ever have enough in the future. So a trip to Peru will hopefully be on cards.

And that's my story...
 
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SVEN

SVEN

I Wish I'd Been a Jester Too.
Apr 3, 2023
2,642
Those of us in the UK with health problems (my partner & I for two) totally get the futility of hoping for any treatment from the NHS. Unless, of course, you're an MP (there's an NHS Health Centre which has two afternoons a week solely for MPs to attend. Under a pseodoname if they choose) or in an illegal immigrant asylum seeker hotel. In which case there are dedicated local GPs for such facilities.
Just glad you've got as far as you have, best wishes in your current situation.
 
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H

HopeToStay

Member
May 31, 2024
80
Those of us in the UK with health problems (my partner & I for two) totally get the futility of hoping for any treatment from the NHS. Unless, of course, you're an MP (there's an NHS Health Centre which has two afternoons a week solely for MPs to attend. Under a pseodoname if they choose) or in an illegal immigrant asylum seeker hotel. In which case there are dedicated local GPs for such facilities.
Just glad you've got as far as you have, best wishes in your current situation.

Yeah man its a super frustrating system. My GP was worse than useless and just wasted 4 month. Thanks for your wishes.
 
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RosebyAnyName

RosebyAnyName

Staring at the ceiling for 6 hours
Nov 9, 2023
247
I was born with a pinched ureter and had chronic pain my entire childhood because of it. I've been having to fight the useless healthcare system for decades, and even now when I was about to qualify for a stint, they dropped me and just never called me back, and now they won't even respond to me when I try to call them. For some reason, the healthcare system is adamant that you can't have any kidney issues unless you're above the age of 70, even though kidney failure can lead to a very poor quality of life.

If I learn that my kidney issues get really bad, are irreversible, or I can't get treatment for them, I will ctb because dialysis is not worth it for whatever decade or two I might have left at that point. Glad you got some helpful responses from the medical system in other countries.
 
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Reactions: Kit1 and HopeToStay
H

HopeToStay

Member
May 31, 2024
80
I was born with a pinched ureter and had chronic pain my entire childhood because of it. I've been having to fight the useless healthcare system for decades, and even now when I was about to qualify for a stint, they dropped me and just never called me back, and now they won't even respond to me when I try to call them. For some reason, the healthcare system is adamant that you can't have any kidney issues unless you're above the age of 70, even though kidney failure can lead to a very poor quality of life.

If I learn that my kidney issues get really bad, are irreversible, or I can't get treatment for them, I will ctb because dialysis is not worth it for whatever decade or two I might have left at that point. Glad you got some helpful responses from the medical system in other countries.

Hello, are you from the UK too?

Yes dialysis is what i feared. A pointless existence. But even living with the notion that that might be in my future is appalling enough. That's why it was such a terrifying 8 months, i just felt like my future was disappearing and the healthcare system didn't care and would only treat me if i was already really ill, at which point i wouldn't want to live anyway.

Best of luck to you.
 
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Reactions: Kit1
RosebyAnyName

RosebyAnyName

Staring at the ceiling for 6 hours
Nov 9, 2023
247
Hello, are you from the UK too?

Yes dialysis is what i feared. A pointless existence. But even living with the notion that that might be in my future is appalling enough. That's why it was such a terrifying 8 months, i just felt like my future was disappearing and the healthcare system didn't care and would only treat me if i was already really ill, at which point i wouldn't want to live anyway.

Best of luck to you.
Not comfortable sharing publicly, but it's a system that's similar to the UK's.

It's funny how everyone will jump over themselves to stop people from killing themselves using peaceful methods like N, meanwhile they couldn't care less about early intervention for painful chronic conditions and would rather have people rot in a hospital bed.
 
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K

Kit1

Enlightened
Oct 24, 2023
1,099
I am in the UK. Stopped engaging with my GP at the end of August 2023 and stopped engaging with NHS. Haven't taken any of my meds for over 15 months and I have resigned myself to knowing that when my health hits rock bottom and if I don't die naturally, I will just end it as I have lost all my trust in my GP/NHS to let them even look after me or treat me.
 
H

HopeToStay

Member
May 31, 2024
80
I am in the UK. Stopped engaging with my GP at the end of August 2023 and stopped engaging with NHS. Haven't taken any of my meds for over 15 months and I have resigned myself to knowing that when my health hits rock bottom and if I don't die naturally, I will just end it as I have lost all my trust in my GP/NHS to let them even look after me or treat me.

Yeah it's really poor. It just feels like you don't even have healthcare at times
 
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Reactions: Kit1

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