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dreamsofhome

dreamsofhome

Blessed are the Peacemakers
Nov 11, 2024
11
I just wanted to do a little bitchin' cause I don't feel comfortable doing it anywhere else. It's hard to open up to people irl, which is why I suppose therapy (despite over a decade of trying) never worked out for me. But, I digress. Also, sorry for the formatting of my words or if they come off as weird, I'm not the most eloquent writer and my thoughts are always scrambled.

I grew up with a Dad who was severely chronically ill, suffered with chronic pain. Growing up, I didn't understand and was admittedly a bit resentful of the things he couldn't do and the fact that I lost my childhood to essentially being a nurse + therapist when there were capable adults that could have helped and chose not to. But, if given the chance I'd do it all over again for him. I understand now. I understand it all too well and I fucking hate it. One of my biggest fears was ending up in the same condition that he was and well.. here I am. My body is betraying/failing me a little more every day.

29 years old, have a laundry list of health problems and diagnoses, that I had to fight like hell to get in the first place because no health provider would take me seriously for years while my physical and mental health continued to deteriorate. I was "too young" to be in pain or it obviously had something to do with my period, or it was all because I'm overweight (even when I ended up rapidly losing a lot of weight, not even trying, I just felt so fucking bad all the time. I was met with congratulation not concern. Ha.) or was looked at like a drug seeker when I never asked for anything. Hell, I about overdosed myself on OTC pain relievers because that's all they'd tell me to take and I so desperately wanted the pain to end, or dull.

I don't even think that I take my pain seriously either. Because I know that there are people who have it a lot worse, people who have experienced pain beyond what I have, who are in a worse condition and I feel like I'm just being whiny about what I'm going through. I'm constantly gaslighting myself, or feeling like I don't have the right to complain when things could be worse.

I won't go into specifics but I'm in a lot of pain, constantly. Back, joints, muscles, gastrointestinal issues, worsening eyesight, migraines, teeth/jaw problems. Not to mention everything mentally, plus, god… never doubt physical pains ability to fuck with your mental health. It's started to take away the things I loved doing, the small things that helped to keep me going. One example, art has always been my biggest passion, like the one thing that I had. It hurts now, drawing hurts. My fingers/hand locks up, and I can't do it for long. Doesn't matter how many ergonomic devices I buy, it's just getting worse. Plus the fact that my eyesight is getting increasingly bad. How long until I just can't anymore? Or god forbid, can't do anything anymore?? My Dad was bedridden by the time he was in his mid-30's.

I may not have had much of a quality of life to begin with, but looking back to before things got this bad.. maybe I didn't have it quite as bad as I thought. Now it feels like dying would be a mercy at this point. I ain't ever getting better, but I don't want it to get any worse either.

Thanks for listening.
 
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R. A.

R. A.

Hard to live, harder to die
Aug 8, 2022
934
Aside from the early life stuff, too relatable. But it's all relative - I'm a bit older and only now reaching the "really fucked up" stage of the rotting meat prison & medical system adventure adventure. So, compared to me - who wants nothing more than to die, aside from being miraculously cured or at least back to last year's level of health shit - your suffering is "worse". I felt better when I realised and started framing it as: I would want those suffering more than me to have it better than me. I would never wish my amount of suffering on an innocent person!

And medical system bullshit is literally glorified oppression and violence. I despise the MIC. It is too real. Also, losing core functionality sucks. It's become painful to talk and deep chats with friends was one of few balms for my soul. Now that causes suffering. Fate can be too cruel ❤️‍🩹
 
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